I finally saw the doctor – he’s pretty convinced I have Ehlers Danlos Syndrome. I have to go for testing for a specific subtype – but he’s pretty sure I have the hypermobility…thing. Yeah….I am still adjusting but of the research ive done and the people ive talked to? It makes sense. I dont know how I feel about it though. I’m just tired. Which is apparently very common with those who suffer from this…..but still what am I supposed to do with this information right? Like what now?
I dont know.
But understanding my body and knowing what I am going through – helps me ya know? There is no cure for this just treating of the symptoms. I believe – still have a lot of reading to do.
so here it goes.
I can get injured in anyway shape or form. I can get injured wearing head to toe bubble wrap or in a bathing suit, wearing flip flops or combat boots. It has nothing to do with brittle bones – though I do have to get tested for bone density. I have to stop running – which is killing me. But I need to keep working out – even on bad days. I have to keep mobile.
Thing that makes it good? I know. Things that make it suck? I dont know.
Lord – I dont understand. I ask that you would just guide me. Please show me what to do cause I dont know. How do I handle this? What now?