It’s 7 something in the morning and I had a rough night. My legs are so tired .. I’m in such pain I can’t even go to church (it’s a Sunday). But yet I still will praise my Lord. God I hate this so much, but I trust and hope in you alone. In the […]
Search Results for: Ehlers
Exercise sucks
Yeah. That’s right a former fitness influencer is saying: Exercise sucks. Why? Well .. Cause it does. With being diagnosed with ehlers danlos the first thing I learned? The importance of exercise in my daily life. If I don’t exercise – even something as simple as a stretch workout or a bike ride – I […]
Injuries suck
My husband is injured – possibly needs surgery. I have ehlers danlos and of course dislocated my knee (from sitting too long) … injuries suck. The best part? We need to move out before the end of March … My heart rate is still crazy – the palpitations have lessened so much but my rate […]
im scared
I’m scared. Got a new symptom that at first was once in a blue moon, now I’m fighting it constantly. Numbness and coldness in my hands… It started out just a finger numb for a bit then I would pop my knuckles and I felt better. Or I would pump my hands open and closed […]
Runs
I used to run. I loved going on runs. It was my favorite time and I felt on top of the world after. Y’all I would get such a stress relief after it was beautiful. Then I got Covid. I could barely get a mile in. Then once I built up? I was running much […]
New symptom
yalll know how I just love doctors right? And after having seen just about too many of them (and none of them believing me) – i’m done. I have learned a couple of new tricks and tips and stuff to manage my symptoms and I was honestly convinced to not continue to getting diagnosed. I […]
I will rest my soul
I will call upon Your nameAnd keep my eyes above the wavesWhen oceans riseMy soul will rest in Your embraceFor I am Yours and You are mine – Lyrics OCEANS Rend collective So some huge things are in the works, not gonna share cause its still all in the air. But I will share that […]
Knucklehead
Y’all? This knucklehead done did it again. Sigh. When will I learn? I went and looked up my symptoms online. Apparently I’m dying from like 10 different things. Some of which .. actually do run through my family and are common with people who have EDS. Sigh. It’s been a rough time of it. My […]
Well this is interesting
My life. My life is taking an interesting turn. I don’t know where I left y’all (I write these in advance) … but I do not have the vascular version of ehlers danlos. But I need to see a geneticist for the hyper mobile version. Turns out in this state there are only 2 places […]
All about genetics
Yeah. All about genetics – what does that even mean? Well in this instance? If means I got the results back from my genetics test back finally. I do not have certain forms of Ehlers Danlos … but I can still have one version. How do I find if I have that? I go see […]
How Jesus Changed Me 