Talking about my life and how God used every instance in my life to draw closer to Him
So I was impatient about the genetics….geneticist appointment. And I found out what I have waiting for me. Some more waiting. Lemme ‘splain … So I called them and they explained to me that I have to wait until basically November to hear if I get an appointment. If. They have to go through all […]
Yeah. All about genetics – what does that even mean? Well in this instance? If means I got the results back from my genetics test back finally. I do not have certain forms of Ehlers Danlos … but I can still have one version. How do I find if I have that? I go see […]
Looking at me .. I look fairly normal except for my eyebrow. You may think I have a political statement or fashion statement. But it’s really much simpler…I’m chronically ill It looks like I have half an eyebrow .. cause I do. Because of my POTS symptoms .. or hypothyroidism or family genetics .. or […]
Okay. Okay. Bear with me as I weave a story of my … sorry bad brain fog moment. What was I saying? …. …. My symptoms! Okay. Okay. Okay. Sorry OCD moment there – I legit still wanna say okay but we are pushing through Okay. Ugh. I’ve been weak, tired, dizzy, then I realized […]
My life. My life is taking an interesting turn. I don’t know where I left y’all (I write these in advance) … but I do not have the vascular version of ehlers danlos. But I need to see a geneticist for the hyper mobile version. Turns out in this state there are only 2 places […]
As y’all know I’m a spoonie. I’m a chronic illness sufferer. I have several issues that I’m waiting for genetic testing results – or however you say that correctly. Sorry it’s been a day. But I’m here to say? I’m done and I am coming out fighting. Lemme splain So I’ve been doing this stomach […]
Yup. So here I am. Still waiting. Going on the 2nd month of waiting on my genetic testing results … this is awesome *sarcasm* you know how I love to be stiiiilllll … waiting The best part? Is I’m noticing the kids having sign of having a hypermobility issue as well. Awesome *severe sarcasm* I […]
I’m still waiting for genetic testing from the doctor, but I thought I’d let you in on a secret. Ehlers Danlos is not a rare disease because people don’t have it but because people don’t talk about it. I know what you’re thinking cause I thought it too: Say wha? how? Well it’s a disease […]
How Jesus Changed Me 