So I am sitting here in the midst of a flare. It’s been all day thing – apparently it’s gonna rain today. Yeah. Now I’m a human barometer – which is always fun. Anyways POTS update on my appointment We are the middle of a move – literally just set the date for our official […]
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Update on POTS
So well … here it is. I am pretty sure I have POTS. I did the poor man’s tilt table test and it indicates that I have POTS – definitely have a dysautonomic disorder. Now as I told y’all recently my appointment was canceled on me for September. Todays a Saturday and I was gonna […]
Underdog
That’s a classic song underdog from Audio Adrenaline…take a listen. That’s me right now. I’m an underdog for so many reasons but for the sake of todays post? My health. I started that high salt, low carb diet right? Friend? I started feeling fantastic. I started having energy. I started feeling hungry. I was feeling […]
True joy
I love this song by Tauren Wells – “there will be joy”. It’s a great song, I would encourage you to check it out. But it doesn’t speak of real true joy. Ok ok chill out – it’s a great song. But I have an issue with the line: “…if it’s not good then he’s […]
Surviving
I’m surviving. It’s been a minute since I wrote but I’m surviving. We are hit with a couple more trials .. not mine to share but? We’re surviving. More and more online I’m seeing this trend of victimhood. And I kinda understand the trend – the more the victimization the more attention you get. I […]
Confessing
Ok I’m confessing the truth … I opened up my Instagram account again. There’s a certain draw to that app. It’s weird. Well .. I honestly started it up again so I can find out more information on POTS. And I did – but then I started noticing other things. I was looking for attention. […]
My eyebrow
Looking at me .. I look fairly normal except for my eyebrow. You may think I have a political statement or fashion statement. But it’s really much simpler…I’m chronically ill It looks like I have half an eyebrow .. cause I do. Because of my POTS symptoms .. or hypothyroidism or family genetics .. or […]
Diet changes
Well .:. I have my appointment with the POTS cardiologist. In March … sigh. Well … now I hafta wait. In the meantime .. like I said previously: I make the changes I can to help my symptoms. Diet changes, exercise changes, and clothing. March 1st come soon – please God. So as far as […]
Update on my doctors
Wanted to give an update on my doctors appointment. I canceled it. I’m done with dealing with doctors who don’t know anything about what I’m going through. I finally got added to the Georgia dysautonomia group and found a couple of doctors in my area that can help. There’s a doctor who specializes in POTS, […]
im scared
I’m scared. Got a new symptom that at first was once in a blue moon, now I’m fighting it constantly. Numbness and coldness in my hands… It started out just a finger numb for a bit then I would pop my knuckles and I felt better. Or I would pump my hands open and closed […]