im scared

I’m scared. Got a new symptom that at first was once in a blue moon, now I’m fighting it constantly. Numbness and coldness in my hands… It started out just a finger numb for a bit then I would pop my knuckles and I felt better. Or I would pump my hands open and closed […]


Sigh. So yesterday I finally went to urgent care and got my diagnosis. Well for my knee at least. I have dislocated my knee cap and I have advanced arthritis in several locations in my knee. I didn’t know that could happen – but people with EDS are susceptible to orthoarthritis … I know thats […]