Talking about my life and how God used every instance in my life to draw closer to Him
I’m scared. Got a new symptom that at first was once in a blue moon, now I’m fighting it constantly. Numbness and coldness in my hands… It started out just a finger numb for a bit then I would pop my knuckles and I felt better. Or I would pump my hands open and closed […]
I used to run. I loved going on runs. It was my favorite time and I felt on top of the world after. Y’all I would get such a stress relief after it was beautiful. Then I got Covid. I could barely get a mile in. Then once I built up? I was running much […]
yalll know how I just love doctors right? And after having seen just about too many of them (and none of them believing me) – i’m done. I have learned a couple of new tricks and tips and stuff to manage my symptoms and I was honestly convinced to not continue to getting diagnosed. I […]
I will call upon Your nameAnd keep my eyes above the wavesWhen oceans riseMy soul will rest in Your embraceFor I am Yours and You are mine – Lyrics OCEANS Rend collective So some huge things are in the works, not gonna share cause its still all in the air. But I will share that […]
Y’all? This knucklehead done did it again. Sigh. When will I learn? I went and looked up my symptoms online. Apparently I’m dying from like 10 different things. Some of which .. actually do run through my family and are common with people who have EDS. Sigh. It’s been a rough time of it. My […]
My life. My life is taking an interesting turn. I don’t know where I left y’all (I write these in advance) … but I do not have the vascular version of ehlers danlos. But I need to see a geneticist for the hyper mobile version. Turns out in this state there are only 2 places […]
Yeah. All about genetics – what does that even mean? Well in this instance? If means I got the results back from my genetics test back finally. I do not have certain forms of Ehlers Danlos … but I can still have one version. How do I find if I have that? I go see […]
Yeah here I am talking about that Spoonie life again. Oh well. But bear with me cause I am gonna use that to show you how Jesus changed me. Long story short? It’s been a crappy 3yrs of my body breaking down. Here’s a pic of me during my worst: I used to chronicle my […]
Like for real. Things get in the way and it really pisses me off. Like I went to the doctor finally for my latest injury. I was optimistic, I was joyful looking toward finally starting the process of healing from this and then the doctor told me I was too fat. Too fat. This girl […]
Sigh. So yesterday I finally went to urgent care and got my diagnosis. Well for my knee at least. I have dislocated my knee cap and I have advanced arthritis in several locations in my knee. I didn’t know that could happen – but people with EDS are susceptible to orthoarthritis … I know thats […]
How Jesus Changed Me 