So I’m learning more and more about my new .:. Disease? Issue? MCAS is .. well weird. I found out that stress can trigger a mast cell flare .. was watching the news when? My nose started acting like a faucet and my lips started burning. Currently my lips are sore and I have those […]
Search Results for: flare
Graves into gardens
I love that song: Graves into gardens. I’ll put the links later in the post. But it perfectly describes where I am at lately. Well technically I’m in a flare and I can barely do anything – but spiritually? I’ve never felt such peace. This grave has finally become a garden Last year this time […]
Talk about Jesus
I’m sitting here in the hallway of church. I’m having a bad flare. The pain level is ridiculous. So much so I’m literally in a ball. The pressure is helping at least. Jesus Lord why do I hafta go through this? I just wanna learn more about having a relationship with God. But I did. […]
POTS update
So I am sitting here in the midst of a flare. It’s been all day thing – apparently it’s gonna rain today. Yeah. Now I’m a human barometer – which is always fun. Anyways POTS update on my appointment We are the middle of a move – literally just set the date for our official […]
Things are rough here
Things are rough here .. yes. I am currently going through some symptoms that include weakness to the point of collapsing. It’s even gotten as far as passing out. But? I push on. I want to be able to shut out the world and just stay in all day. Especially on a flare day. Shoo […]
Too tired to match
You may be a chronic illness sufferer if your clothes are mismatched and you don’t care. Wai .. Wai .. wait…it’s more like you’re too tired to match. Case in point: Today I took the kids out to hang out, bowl and shop a little on a rainy day. Which I’m quickly realizing is a […]
Lonely
As a Spoonie? You can’t help but feel incredibly lonely. No one truly understands the pain, the exhaustion, the fact that your life is drastically changing minute by minute. People can feel sorry but no one truly understands and that’s lonely I’m going through a bad flare…or whatever is happening in my body currently. It’s […]
So much
There just so much of what I want to say. I’m having a bad flare up due to stress – assuming there. I literally have no idea what is happening to my body right now. I excused myself from dinner cause … well I just didn’t feel right. My back hurt, I’m weak, exhausted, emotionally […]
Alone
Sometimes I feel so alone. So mad that I’m in a certain situation. Currently I’m going through a bad flare up from IBS and a bad cold. Did I ever mention to y’all that I’m a big whiner – thought I’d put that out there. Anyways, alone. I feel alone. I feel misunderstood. Ashamed. Alone. […]
No memory
As an adult? Yeah my memory sucks majorly yall. Man I miss my brain. Probably because of the abuse, but I don’t remember most of my childhood. I don’t remember the good, I get flashes here and there but I don’t remember much. I remember the bad, I remember constantly being afraid – funny how […]