MCAS is weird

So I’m learning more and more about my new .:. Disease? Issue? MCAS is .. well weird. I found out that stress can trigger a mast cell flare .. was watching the news when? My nose started acting like a faucet and my lips started burning. Currently my lips are sore and I have those […]

Lonely

As a Spoonie? You can’t help but feel incredibly lonely. No one truly understands the pain, the exhaustion, the fact that your life is drastically changing minute by minute. People can feel sorry but no one truly understands and that’s lonely I’m going through a bad flare…or whatever is happening in my body currently. It’s […]

So much

There just so much of what I want to say. I’m having a bad flare up due to stress – assuming there. I literally have no idea what is happening to my body right now. I excused myself from dinner cause … well I just didn’t feel right. My back hurt, I’m weak, exhausted, emotionally […]

Alone

Sometimes I feel so alone. So mad that I’m in a certain situation. Currently I’m going through a bad flare up from IBS and a bad cold. Did I ever mention to y’all that I’m a big whiner – thought I’d put that out there. Anyways, alone. I feel alone. I feel misunderstood. Ashamed. Alone. […]

No memory

As an adult? Yeah my memory sucks majorly yall. Man I miss my brain. Probably because of the abuse, but I don’t remember most of my childhood. I don’t remember the good, I get flashes here and there but I don’t remember much. I remember the bad, I remember constantly being afraid – funny how […]