Still here

Just in case you were wondering … yeah my POTS symptoms are still here. I’m still weak and still dizzy. My eating is like crap and my stomach is reacting like crazy. But that has taken a back seat to everything. Wha? I’m a mom. The comfort and peace of my kids take precedence. But […]

Say wha?

I’m still waiting for genetic testing from the doctor, but I thought I’d let you in on a secret. Ehlers Danlos is not a rare disease because people don’t have it but because people don’t talk about it. I know what you’re thinking cause I thought it too: Say wha? how? Well it’s a disease […]