Lonely

As a Spoonie? You can’t help but feel incredibly lonely. No one truly understands the pain, the exhaustion, the fact that your life is drastically changing minute by minute. People can feel sorry but no one truly understands and that’s lonely I’m going through a bad flare…or whatever is happening in my body currently. It’s […]

So much

There just so much of what I want to say. I’m having a bad flare up due to stress – assuming there. I literally have no idea what is happening to my body right now. I excused myself from dinner cause … well I just didn’t feel right. My back hurt, I’m weak, exhausted, emotionally […]

Having faith

As a Spoonie, I hear this constantly from people when I say: I’m suffering. “Are you having enough faith?” “God will heal you! Just have the faith” Y’all…I have faith. I know my Beautiful creator can do anything. Anything at all, but it still hurts. This sucks. I can’t play with kids like I used […]

Go getter

I’m a go getter. I see things that need to be done and I get it done. my husband on the other hand? He’s totally laid back. For example? We are looking for a house to move closer to my husbands job. We need more space too. To me? I hear – my husband needs […]