So I am sitting here in the midst of a flare. It’s been all day thing – apparently it’s gonna rain today. Yeah. Now I’m a human barometer – which is always fun. Anyways POTS update on my appointment We are the middle of a move – literally just set the date for our official […]
Search Results for: pots
Update on POTS
So well … here it is. I am pretty sure I have POTS. I did the poor man’s tilt table test and it indicates that I have POTS – definitely have a dysautonomic disorder. Now as I told y’all recently my appointment was canceled on me for September. Todays a Saturday and I was gonna […]
Doesn’t even begin
I don’t even know how to ..: this doesn’t even begin ..:. Lord help! Lord I can’t. This is too much. This is scary. Beyond frustrating. I hate this so much But I know you have a plan. So I put my hope in you. Please heal me of these illnesses. But I ask most […]
Fibromyalgia
Got a new diagnosis: fibromyalgia. Great. Lord I thank you for this diagnosis, as it has me on a plan to manage. I know what I need to do.. But this is forever. Why? God I understand. I hate this so much. I want to cry and scream and just give up. But by Your […]
Planning
I’m a planner .:. I plan out every aspect of everything. planning helps me – keep control I guess. I planned on running a marathon – but POTS changed that. I planned on losing a bunch of weight – but MCAS is making that harder and harder. Makes me frustrated and feeling defeated A lot […]
Not doing a thing
I hate it – from the depths of my soul – when I see a need not being met. So I go and do. Whether I want to or not. It pains me not doing a thing. But here I am .. not doing a thing cause my body says no. I guess it has […]
God is cool
Another God is cool story coming up – wait did I call it that previously? Anyways .. lemme tell you this past week has been hard. I know you can’t tell but it’s been a week since I wrote. Has it? Oh my goodness .. let’s just say it’s been a minute. So I have […]
I don’t understand
Lord .. I don’t understand. This life is rough Lord – not knowing what each day brings. The pain. The reactions. I’m tired of this – please take this away from me Lord. I hate this. I do. But I know you are the great healer. The great provider. My mighty and powerful God. I […]
Colder
We still haven’t been able to fix our ac system yet. Working out logistics and all that. It’s a warm day, I have the ac on. Doesn’t work much but we have it on to get some air flowing. So I’m sitting in the master bedroom doing laundry, had to step in the master bath […]
Walk by faith
Ok so we are to walk by faith during those hard times right? But when it’s really hard – how do you walk by faith? Very slowly .. and carefully. And even if the amount of faith you have is as small as a mustard seed? God will do mighty things So Jesus said to […]