Yeah here I am talking about that Spoonie life again. Oh well. But bear with me cause I am gonna use that to show you how Jesus changed me. Long story short? It’s been a crappy 3yrs of my body breaking down. Here’s a pic of me during my worst: I used to chronicle my […]
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Spoonie
I am a spoonie. What does that mean? Well, its a term meaning someone who suffers from a chronic illness. I suffer from several. Doesnt matter what or whatever but what matters is how God uses it right? Well, as someone who is going through it? I never see an end. I remember the first […]
Moments
I go through my moments .. especially since getting sick: “oh my life is horrible” .. “poor me” .. “no one understands”. And so on. I recently went through that. It’s hard living this Spoonie life. Makes ya wanna feel sorry for yourself and push out life. Y’all I have been so tired lately I […]
Ok ok I’m finally learning
I got great news! I’m finally learning to let go of control. Ok ok … I still am a huge knucklehead but im learning. What can I say? I’m a work in progress. But I’m learning. So I had a horrible appointment with my last cardiologist and I was set on not going to another […]
I’m beat down
Y’all … I am beat down. I’m just .. struggling honestly. I am so tired and frustrated and I absolutely hate this feeling. My body is just so worn down y’all. We were driving home from church today and the sun was shining brightly. It literally felt like fire on me. I know it was […]
Doctors
So I’m gonna try to write this without being upset. I went to my doctors appointment yesterday and was turned away. Even after I told them I needed meds refilled and I was a chronic illness sufferer. So here’s how it went. I have several chronic illnesses for which I take meds for. One is […]
Okay Lord
More issues have arisen. My prescription has not yet arrived and our change of address did not go through. This med helps me sleep. I am literally on my last dose today. Okay Lord what’s up? Am I complaining too much? Am I being ungrateful? Please show me Lord. I know you are using all […]
Exhaustion
Who knew sitting and fellowshipping with family would give me this level of exhaustion. I miss the days where I could do anything and not worry about it. This Spoonie life is rough. So today we had the open house for … our house. did I say that right? Moving on…. We bought lunch and […]
Update on POTS
So well … here it is. I am pretty sure I have POTS. I did the poor man’s tilt table test and it indicates that I have POTS – definitely have a dysautonomic disorder. Now as I told y’all recently my appointment was canceled on me for September. Todays a Saturday and I was gonna […]
I’m flailing
i’m a mess y’all …. i’m flailing. I am grasping at straws and I cant anymore. My body aches. I am so weak i dont even trust myself driving. My brain is so foggy – sometimes i cant even hold a conversation. My depression is right on the edge of my brain trying to bust […]