Yeah here I am talking about that Spoonie life again. Oh well. But bear with me cause I am gonna use that to show you how Jesus changed me. Long story short? It’s been a crappy 3yrs of my body breaking down. Here’s a pic of me during my worst: I used to chronicle my […]
Search Results for: spoonie
Spoonie
I am a spoonie. What does that mean? Well, its a term meaning someone who suffers from a chronic illness. I suffer from several. Doesnt matter what or whatever but what matters is how God uses it right? Well, as someone who is going through it? I never see an end. I remember the first […]
Update on POTS
So well … here it is. I am pretty sure I have POTS. I did the poor man’s tilt table test and it indicates that I have POTS – definitely have a dysautonomic disorder. Now as I told y’all recently my appointment was canceled on me for September. Todays a Saturday and I was gonna […]
I’m flailing
i’m a mess y’all …. i’m flailing. I am grasping at straws and I cant anymore. My body aches. I am so weak i dont even trust myself driving. My brain is so foggy – sometimes i cant even hold a conversation. My depression is right on the edge of my brain trying to bust […]
Dude. Really?
When the quarantine happened, bear with me I’m not getting into what you are thinking I’m getting into – we were all thrown for a loop. Masks…and so forth. Again. Not what you think it’s gonna be about. Then things started to open up people had all sorts of ideas. “Why masks? Don’t you dare […]
I’m so over this
Well as you read … whenever. My test results came back normal. I was referred to a POTS specialist. I’m so over this. I want answers now. I want to now already what’s been happening. Lord I can’t. And then – just so you know – living the Spoonie life is rough. Why? Cause everyone […]
Well that happened
So there’s this meme going around for chronic illness suffers. It goes along the lines “getting normal medical test results leads to the doctor saying you’re fine” well that happened. Wait lemme get it for you… Couldn’t find it but this is close: Sigh. My holter monitor results came back normal – thank God. But […]
Just a hint
Pardon our regularly scheduled programming to bring a laugh. Just a hint of what it’s like to be married. So our bathroom we have a shower stall. Apparently it’s in style now. So we hang our towels right on the stall like so. We hang our clean clothes from the hooks and there ya go. […]
Lonely
As a Spoonie? You can’t help but feel incredibly lonely. No one truly understands the pain, the exhaustion, the fact that your life is drastically changing minute by minute. People can feel sorry but no one truly understands and that’s lonely I’m going through a bad flare…or whatever is happening in my body currently. It’s […]
So much
There just so much of what I want to say. I’m having a bad flare up due to stress – assuming there. I literally have no idea what is happening to my body right now. I excused myself from dinner cause … well I just didn’t feel right. My back hurt, I’m weak, exhausted, emotionally […]