Talking about my life and how God used every instance in my life to draw closer to Him
well its Day 4 of me wearing the holter monitor. How is it going? Well I’ll tell ya. Interesting. I have to take it off each morning to charge it for a period of time. They told me it takes an hour and what have i found out? It takes an hour and a half. […]
Y’all? This knucklehead done did it again. Sigh. When will I learn? I went and looked up my symptoms online. Apparently I’m dying from like 10 different things. Some of which .. actually do run through my family and are common with people who have EDS. Sigh. It’s been a rough time of it. My […]
Okay. Okay. Bear with me as I weave a story of my … sorry bad brain fog moment. What was I saying? …. …. My symptoms! Okay. Okay. Okay. Sorry OCD moment there – I legit still wanna say okay but we are pushing through Okay. Ugh. I’ve been weak, tired, dizzy, then I realized […]
My life. My life is taking an interesting turn. I don’t know where I left y’all (I write these in advance) … but I do not have the vascular version of ehlers danlos. But I need to see a geneticist for the hyper mobile version. Turns out in this state there are only 2 places […]
Yeah here I am talking about that Spoonie life again. Oh well. But bear with me cause I am gonna use that to show you how Jesus changed me. Long story short? It’s been a crappy 3yrs of my body breaking down. Here’s a pic of me during my worst: I used to chronicle my […]
Sigh. So yesterday I finally went to urgent care and got my diagnosis. Well for my knee at least. I have dislocated my knee cap and I have advanced arthritis in several locations in my knee. I didn’t know that could happen – but people with EDS are susceptible to orthoarthritis … I know thats […]
I’m still waiting for genetic testing from the doctor, but I thought I’d let you in on a secret. Ehlers Danlos is not a rare disease because people don’t have it but because people don’t talk about it. I know what you’re thinking cause I thought it too: Say wha? how? Well it’s a disease […]
So I just went for testing for the hypermobility syndrome. I’ve told very few people and have gotten various responses: “wow” “you don’t have that – my cousins uncles fathers sisters brother has that and you can’t have that. I know what it looks like” “you can’t have that you’re not skinny enough” and i’ve […]
I finally saw the doctor – he’s pretty convinced I have Ehlers Danlos Syndrome. I have to go for testing for a specific subtype – but he’s pretty sure I have the hypermobility…thing. Yeah….I am still adjusting but of the research ive done and the people ive talked to? It makes sense. I dont know […]
everyone has ideas as to what Paul means when he talks about a “thorn in the flesh”. He means his eye issues … he’s talking about his guilt of killing people …. and so on. I like they dont talk about what it was. Cause its the idea behind it. I know a thing or […]
How Jesus Changed Me 