Sigh

Sigh. So yesterday I finally went to urgent care and got my diagnosis. Well for my knee at least. I have dislocated my knee cap and I have advanced arthritis in several locations in my knee. I didn’t know that could happen – but people with EDS are susceptible to orthoarthritis … I know thats […]

Say wha?

I’m still waiting for genetic testing from the doctor, but I thought I’d let you in on a secret. Ehlers Danlos is not a rare disease because people don’t have it but because people don’t talk about it. I know what you’re thinking cause I thought it too: Say wha? how? Well it’s a disease […]

The stigma

So I just went for testing for the hypermobility syndrome. I’ve told very few people and have gotten various responses: “wow” “you don’t have that – my cousins uncles fathers sisters brother has that and you can’t have that. I know what it looks like” “you can’t have that you’re not skinny enough” and i’ve […]