Well as you read … whenever. My test results came back normal. I was referred to a POTS specialist. I’m so over this. I want answers now. I want to now already what’s been happening. Lord I can’t. And then – just so you know – living the Spoonie life is rough. Why? Cause everyone […]
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Well that happened
So there’s this meme going around for chronic illness suffers. It goes along the lines “getting normal medical test results leads to the doctor saying you’re fine” well that happened. Wait lemme get it for you… Couldn’t find it but this is close: Sigh. My holter monitor results came back normal – thank God. But […]
Just a hint
Pardon our regularly scheduled programming to bring a laugh. Just a hint of what it’s like to be married. So our bathroom we have a shower stall. Apparently it’s in style now. So we hang our towels right on the stall like so. We hang our clean clothes from the hooks and there ya go. […]
Lonely
As a Spoonie? You can’t help but feel incredibly lonely. No one truly understands the pain, the exhaustion, the fact that your life is drastically changing minute by minute. People can feel sorry but no one truly understands and that’s lonely I’m going through a bad flare…or whatever is happening in my body currently. It’s […]
So much
There just so much of what I want to say. I’m having a bad flare up due to stress – assuming there. I literally have no idea what is happening to my body right now. I excused myself from dinner cause … well I just didn’t feel right. My back hurt, I’m weak, exhausted, emotionally […]
All about genetics
Yeah. All about genetics – what does that even mean? Well in this instance? If means I got the results back from my genetics test back finally. I do not have certain forms of Ehlers Danlos … but I can still have one version. How do I find if I have that? I go see […]
Having faith
As a Spoonie, I hear this constantly from people when I say: I’m suffering. “Are you having enough faith?” “God will heal you! Just have the faith” Y’all…I have faith. I know my Beautiful creator can do anything. Anything at all, but it still hurts. This sucks. I can’t play with kids like I used […]
I don’t know what to say
I don’t. It’s been a couple of bad pain days – non stop rainy days. My leg is killing me. And the worst part is? The part with the major arthritis doesn’t hurt that much – it’s the muscle pain. That’s the pain that cripples me and leaves me near tears. I don’t know what […]
Things get in the way
Like for real. Things get in the way and it really pisses me off. Like I went to the doctor finally for my latest injury. I was optimistic, I was joyful looking toward finally starting the process of healing from this and then the doctor told me I was too fat. Too fat. This girl […]
Attitude
Through this crappy time, I’ve been learning a lot. Like? It’s all about attitude and your focus isn’t it? Cause if not? You’d be just wallowing in self pity and despair. That’s what I’ve been doing. Just check my twitter. I mean ..: I’m human. What else can I say? Spoonie life is rough and […]
How Jesus Changed Me 