Brave

Gotta do a moment and talk about a very brave moment from my daughter. We went on vacation last week (I think…again I post at different times) and we went to a water park. Hold the phone lemme back track. My daughter has sensory issues and hates water on her face. No literally for the […]

Dude

Dude. Do you have any idea how much this process pisses me off? By process, I mean this time of illness and learning. Ugh. This whole thing pisses me off so much. Having to say no to things cause I physically can’t. Having to have people make plans without me? Not being considered cause I’m […]

Dear Lord

I thank you my dear Lord. I thank you for your mercies and your strength. I thank you for teaching me. I thank you for loving in spite of my complaining. I thank you Lord for this time of pain and suffering. I hate it to my core but I am thankful because I am […]

Lonely

As a Spoonie? You can’t help but feel incredibly lonely. No one truly understands the pain, the exhaustion, the fact that your life is drastically changing minute by minute. People can feel sorry but no one truly understands and that’s lonely I’m going through a bad flare…or whatever is happening in my body currently. It’s […]

Go getter

I’m a go getter. I see things that need to be done and I get it done. my husband on the other hand? He’s totally laid back. For example? We are looking for a house to move closer to my husbands job. We need more space too. To me? I hear – my husband needs […]