So my heart rate hit 135 .. while I was sleeping. My exhaustion level is at ridiculous levels. I have a couple more days left to see the pots doctor. I’m not gonna lie and say I’m not scared – cause I am. But I trust you Lord.
Tag: God
More God is awesome stuff
Last night we got a distressing message about a loved one going to the hospital. It was hard news but have I told how awesome God is? Well here is more how awesome stuff about how God works. In the middle of the night, we got a message that originally freaked me out. My brother […]
Moments
I go through my moments .. especially since getting sick: “oh my life is horrible” .. “poor me” .. “no one understands”. And so on. I recently went through that. It’s hard living this Spoonie life. Makes ya wanna feel sorry for yourself and push out life. Y’all I have been so tired lately I […]
7
It’s 7 something in the morning and I had a rough night. My legs are so tired .. I’m in such pain I can’t even go to church (it’s a Sunday). But yet I still will praise my Lord. God I hate this so much, but I trust and hope in you alone. In the […]
The continuing issue of my eyebrow
I’m done. My eyebrow? I mean .:. This is just not fair. Take a look for yourself at the continuing issue… Now I’m losing hair in the middle of my eyebrow. My daughter says I look cool .. sigh. I’m tired of my weird body. Lord please grant me wisdom on how to deal with […]
Exercise sucks
Yeah. That’s right a former fitness influencer is saying: Exercise sucks. Why? Well .. Cause it does. With being diagnosed with ehlers danlos the first thing I learned? The importance of exercise in my daily life. If I don’t exercise – even something as simple as a stretch workout or a bike ride – I […]
Explanation
I believe that this picture deserves an explanation .. I mean beyond the obvious Star Wars reference. I mean an explanation as to how weird marriage is. I’m obsessed with the Star Wars (OG films) of course but .. this quote specifically is significant. So my husband is awesome .. my soul mate .. and […]
Patience
Lord I understand that you are trying to teach us patience .. but please can we stop learning this lesson? Lord I know you have a plan, but why does this have to be so difficult? We have had thing after thing these past 2+ years. Why? Honestly? This ain’t fair … this is beyond […]
Valentine’s
Today is Valentine’s Day. I know I had a post on the actual day but I couldn’t brain. So here we are. My heart is not working right – almost passed out yesterday from taking out the trash. Today I passed out from putting on my compression sleeves. Sigh. This Valentine’s sucks My husband got […]
First day
So we are in a rental now .. had to give 60 days notice before we moved out, right? So we are taking that time to slowly move. Todays our first day. My husband is injured (remember surgery coming up) so we have help – thank God. But both my husband and I feel bad. […]
How Jesus Changed Me 