I feel so alone. All by myself is definitely my theme song of the day. I’m trying to fight these thoughts of bitterness but here I am all alone sitting here with all this to do And that’s just my room. I have done the kitchen … all by myself. I have done the laundry […]
Tag: spoonie
New symptom
yalll know how I just love doctors right? And after having seen just about too many of them (and none of them believing me) – i’m done. I have learned a couple of new tricks and tips and stuff to manage my symptoms and I was honestly convinced to not continue to getting diagnosed. I […]
I hate this so much y’all
I’m sitting here writing this and I’m frustrated. Why cause even this is tiring me out. Y’all? I hate this so much. I have so much to do with packing this house. I have all these ideas and can I do them? Probably not. I hate this so much. I know God has a plan […]
We had an offer
yall…lemme tell you how God has been working in our life. One day my husband saw a job position in GA. We talked a little and the next day he sent his application. That night? He got a call from the company to set up an interview. The next week he had the interview and […]
Exhaustion
Who knew sitting and fellowshipping with family would give me this level of exhaustion. I miss the days where I could do anything and not worry about it. This Spoonie life is rough. So today we had the open house for … our house. did I say that right? Moving on…. We bought lunch and […]
Poor man’s tilt table
So there’s this thing called the poor man’s tilt table test. So backstory real quick: the major way to get diagnosed with POTS is to do a tilt table test. The poor man’s is a version you can do at home. I did it twice. Both times I tested positive. So. Yeah. What does that […]
Brain fog sucks
Y’all I can’t even. My brain fog sometimes it just makes me sound like the biggest idiot. I can’t think of words…I lose my thought before I even had it. Ugh, this sucks. So my hubbys current job has been crazy busy so most of the time it’s been me dealing with the real estate […]
Always
Once I get my water in? I’m always cold. Always. You would think that was great during this heat wave. You would be wrong Like the other day? It was 100 here – during the big heat wave. Well I felt nothing. In fact, it felt quite nice to me. That’s where the problem lies. […]
Okay let me get this straight
Okay Lord. Let me get this straight. We move into a new house in a new state…sight unseen? Lord I praise you for you are Lord of all and I know I should trust you but dude! This is difficult. A house unseen. How am I supposed to plan? How am I supposed to prepare? […]
POTS update
So I am sitting here in the midst of a flare. It’s been all day thing – apparently it’s gonna rain today. Yeah. Now I’m a human barometer – which is always fun. Anyways POTS update on my appointment We are the middle of a move – literally just set the date for our official […]
How Jesus Changed Me 