well its Day 4 of me wearing the holter monitor. How is it going? Well I’ll tell ya. Interesting. I have to take it off each morning to charge it for a period of time. They told me it takes an hour and what have i found out? It takes an hour and a half. […]
Tag: Trust
Some more genetics
So I was impatient about the genetics….geneticist appointment. And I found out what I have waiting for me. Some more waiting. Lemme ‘splain … So I called them and they explained to me that I have to wait until basically November to hear if I get an appointment. If. They have to go through all […]
Dear Lord
I thank you my dear Lord. I thank you for your mercies and your strength. I thank you for teaching me. I thank you for loving in spite of my complaining. I thank you Lord for this time of pain and suffering. I hate it to my core but I am thankful because I am […]
Okay okay
Okay. Okay. Bear with me as I weave a story of my … sorry bad brain fog moment. What was I saying? …. …. My symptoms! Okay. Okay. Okay. Sorry OCD moment there – I legit still wanna say okay but we are pushing through Okay. Ugh. I’ve been weak, tired, dizzy, then I realized […]
Well this is interesting
My life. My life is taking an interesting turn. I don’t know where I left y’all (I write these in advance) … but I do not have the vascular version of ehlers danlos. But I need to see a geneticist for the hyper mobile version. Turns out in this state there are only 2 places […]
It’s all about trust
Yes. Yes. I know. My whole blog is all about trust. Well sorry but not sorry. It’s what I’m learning. Sorry for the sass – I’m tired and in pain and I’m nervous. We are traveling tomorrow to locations and timings unknown. No literally unknown. Ok. Maybe not all the locations – I might be […]
Stiiiilllll … waiting
Yup. So here I am. Still waiting. Going on the 2nd month of waiting on my genetic testing results … this is awesome *sarcasm* you know how I love to be stiiiilllll … waiting The best part? Is I’m noticing the kids having sign of having a hypermobility issue as well. Awesome *severe sarcasm* I […]
For real?!
People don’t do what I want and it’s really annoying. No for real. why can’t people do what I want?! It’s not fair. This world would be such an easier place to live in – if everyone just listened to me. Right? Wait – thats not how this works? no for real. Sometimes i just […]
im mad
Lord……yea im admitting it. Im mad. But seriously? Why? why do I hafta go through this? Forgive me Lord but I dont want to go through this. I want to be healthy for my family. I want to not be in pain. I want to be that mom for my kids. I hate being out […]
Call upon the name of the Lord
Its been a time – heres the catch up link. And God has been teaching me a lot. But mostly how to call upon the name of the Lord. Like literally this lesson in trust? Is so freaking difficult. I hate it. While of course on the other hand not trusting is worse. But it […]